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Blog Posts

Ben's Friends Monthly Newsletter - July 2014 Issue

Posted by Ben Munoz on July 31, 2014 at 11:37am 0 Comments

Just the Stats:

Communities:36

Friends:41,000+



Welcome New Members and Greetings from Ben's Friends!

 

"You're a firework," as the song goes. We…
Continue

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Learn More About Myeloma

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About

 

What is Multiple Myeloma?

Myeloma or Multiple Myeloma is a cancer of the plasma cells which are responsible for producing antibodies. Abnormal cells accumulate in the bone marrow, which then results to the interference of the production of normal blood cells.

In multiple myeloma, collections of abnormal plasma cells accumulate in the bone marrow, where they interfere with the production of normal blood cells. Most cases of myeloma also feature the production of a paraprotein—an abnormal antibody which can cause kidney problems. Bone lesions and hypercalcemia (high calcium levels) are also often encountered.

Forum

Tribute to Arnie

Started by rodney in General on Thursday. 0 Replies

Arnie's Rebounding World, that's the name of the stories posted on the myeloma beacon, over 40 of them written by a patient who was extremely ill. He left us at age 56, way to young. I read many of his stories, not bad for a  doctor. They encouraged…Continue

Sean Vitka & Blue Redefined Patient Organization Sponsors Ben's Friends

Started by Scott orn in General. Last reply by dancermom Jul 23. 1 Reply

Thrilled to announce that Ben's Friends received a $1,500 donation from Sean Vitka and Blue Redefined (http://www.blueredefined.org/), a non profit patient organization. It's incredible to be recognized by…Continue

Help Two Roads to Travel

Started by rodney in General. Last reply by rodney Jul 22. 3 Replies

Quite often in life we are given choices to make, most times you do not know if you have made the correct quite often years later. And we think about it, I could only how could I have known what was the right thing to do? What If i had chosen the…Continue

good information

Started by rodney in General. Last reply by JerseyGyrl Jul 20. 1 Reply

Treatment Regimen Featuring Revlimid-Velcade-Dexamethasone Therapy And Stem Cell Transplantation Yields Deep Responses In Newly Diagnosed Multiple Myeloma31 Comments By…Continue

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Latest Activity


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dancermom liked rodney's discussion Tribute to Arnie
5 minutes ago

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JerseyGyrl liked Ben Munoz's blog post Ben's Friends Monthly Newsletter - July 2014 Issue
12 hours ago

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Ben Munoz posted a blog post

Ben's Friends Monthly Newsletter - July 2014 Issue

Just the Stats:Communities:36Friends:41,000+Welcome New Members and Greetings from Ben's…See More
yesterday

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JerseyGyrl liked rodney's discussion Tribute to Arnie
yesterday

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rodney posted a discussion

Tribute to Arnie

Arnie's Rebounding World, that's the name of the stories posted on the myeloma beacon, over 40 of…See More
Thursday

Moderator
dancermom commented on lostone's blog post crazy dream
"I'm sorry, lostone, my dad is gone, too, from pancreatic cancer. It is especially hard when…"
Wednesday

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rodney replied to rodney's discussion An Unexpected life line
"Liz, thank you so much, your words are so true and have touched my heart. I truly believe that…"
Wednesday
lostone posted a blog post

crazy dream

my dad died almost two years ago and last night I had a dream about me and my fiance getting…See More
Wednesday

Top Content 

1 An Unexpected life line

An Unexpected life line

Posted by rodney on July 20, 2014

2 Help Two Roads to Travel

Help Two Roads to Travel

Posted by rodney on July 20, 2014

3 Sean Vitka & Blue Redefined Patient Organization Sponsors Ben's Friends

Sean Vitka & Blue Redefined Patient Organization Sponsors Ben's Friends

Posted by Scott orn on July 21, 2014

4 good information

good information

Posted by rodney on July 20, 2014

5 crazy dream

crazy dream

Added by lostone on July 30, 2014

 
 
 

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Discussions from Synovial Sarcoma

Would love some advice...

My bf was diagnosed in October 2013. It started as a small grape sized ball on his right elbow... He is not one to go to the dr so it continued to grow for about 6 months. It finally started to hurt so he agreed to go to the dr. Originally they thought it was a fatty tumor. After a biopsy it was confirmed as as. We were obviously devastated. He got cat scans and Mris and it was thought to have spread to his lungs and a possible bone met on his spine.

Fast forward to his time w dr Rosen at…

Additional therapies

Has anyone used other therapies for treatment of cancer, such as immunotherapy(interferon infusion), colony stimulating factors, or monoclonal antibody

New diagnosis of SS in the foot..... Suggestions on how to go about treatment?!!

My sister was diagnosed with SS in her foot less than 1 year ago; She had surgery to remove it ,as well as radiation; however it has come back same foot, but different area. She has only gotten one opinion and currently was told her option was to amputate. She asked for a second opinion, and is now seeing a medical oncologist, who hasnr given her much options as well. we keep hearing that SS of the foot is very rare, thus limited options. So after speaking with another Dr; he would like to…

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