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If your family has been affected by Multiple Myeloma, consider Life With Multiple Myeloma your second home.

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We are patients living with multiple myeloma, here for your support.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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Blog Posts

Local Fundraiser for Ben's Friends

Posted by Scott orn on March 22, 2015 at 10:29am 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we…

Continue

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Learn More About Myeloma

Brought to you by Patient Power.

About

 

What is Multiple Myeloma?

Myeloma or Multiple Myeloma is a cancer of the plasma cells which are responsible for producing antibodies. Abnormal cells accumulate in the bone marrow, which then results to the interference of the production of normal blood cells.

In multiple myeloma, collections of abnormal plasma cells accumulate in the bone marrow, where they interfere with the production of normal blood cells. Most cases of myeloma also feature the production of a paraprotein—an abnormal antibody which can cause kidney problems. Bone lesions and hypercalcemia (high calcium levels) are also often encountered.

Forum

Sunshine While Taking Revlimid

Started by JerseyGyrl in General 18 hours ago. 0 Replies

I received this message today from DoxieMom (a new member of  our community) and wanted to post it here as other's may be able to share their experiences.Hi, JerseyGyrl, Does anyone have experience with sunshine while taking revlimid? We will be on…Continue

Specialist

Started by KK in General. Last reply by KK Mar 8. 2 Replies

Hello to all. I started on Kyprolis 35 mg & Dexamethosone 8 mg 2 weeks ago. It has only been 6 months since my previous treatment. I told my oncologist that I felt I am getting deminishing results from the chemo. He agreed. He explained to me…Continue

#endmyeloma happening this month

Started by srkf12 in General. Last reply by janet kerrigan Mar 8. 1 Reply

What are people doing to recognize March as Myeloma Awareness Month?As a myeloma survivor and new mom I find myself even more passionately drawn to working to advance myeloma research.I volunteer with a nonprofit organization MMORE: Multiple Myeloma…Continue

Tags: #endmyeloma, cancer, myeloma

Dex and Water Weight Gain

Started by Looper in General. Last reply by Riding Hood Mar 5. 2 Replies

Curious as to readers experiences in terms of how long it took after cessation of using Dex until the water weight gain subsided and you reverted back to normal weight?I am on 12 mg of Dex 2 days/wk, 3 weeks per month and it has added 11-14 pds of…Continue

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Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Latest Activity

Scott orn left a comment for DoxieMom
"Wonderful welcome DoxieMom! One tip, if you have specific questions it's best to start a New…"
15 hours ago

Moderator
JerseyGyrl posted a discussion

Sunshine While Taking Revlimid

I received this message today from DoxieMom (a new member of  our community) and wanted to post it…See More
18 hours ago

Moderator
JerseyGyrl left a comment for DoxieMom
"Welcome DoxieMom!  You've come to a great place for support, encouragement &…"
yesterday
DoxieMom is now a member of Life With Multiple Myeloma - Online Support Group
yesterday

Moderator
JerseyGyrl left a comment for Eddie
"Happy Birthday Eddie!  Enjoy your day!"
yesterday

Moderator
JerseyGyrl left a comment for caregiver
"Happy Birthday Caregiver!  Enjoy your day!"
yesterday

Moderator
JerseyGyrl left a comment for windsor
"Happy Birthday Windsor!  Enjoy your day!"
Thursday

Moderator
JerseyGyrl left a comment for salma5k
"Happy Birthday Salma!  Enjoy your day!"
Thursday

Top Content 

1 Dex and Water Weight Gain

Dex and Water Weight Gain

Posted by Looper on March 1, 2015

2 Vice Special Report: Killing Cancer

Vice Special Report: Killing Cancer

Posted by JerseyGyrl on February 28, 2015

3 What a difference a year makes; Living with Multiple Myeloma

What a difference a year makes; Living with Multiple Myeloma

Added by janet kerrigan on March 8, 2015

4 Specialist

Specialist

Posted by KK on March 8, 2015

5 #endmyeloma happening this month

#endmyeloma happening this month

Posted by srkf12 on March 4, 2015

 
 
 

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Discussions from Synovial Sarcoma

Chemotheraphy for Synovial Sarcoma

My husband had three cylces of chemotherapy ( doxurubicin, Ifosfamide, mesna, dacarbazine). In his case (synovial sarcoma- right knee) Chemoteraphy didn't work. The response to chemo was minimal. Does anyone know someone with synovial sarcoma who had a good response to chemoterphy? what combination of drugs did they use?

Back/shoulder/neck pain

Has anyone experienced a nagging back/shoulder blade/neck pain with synovial sarcoma mets to lung?

I have a 5 cm tumor in my right lungs since March. It did not really bother me much until September when I had a pleural effusion. When the liquid was drained in september I had a relief until last week when I started feeling pain again. I had an X ray and ultra sound done on wednesday but there is no new effusion...so the doctors can really figure out what is causing the…

Neulasta

Can anyone tell me of some of their side effects of Neulasta and anything that might have helped.
Thank you

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