February 2012 Community Newsletter
Dear Friends and Family of LifeWithMultipleMyeloma,As you well know, living with Myeloma can be…See More
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February 2012 Community Newsletter
Posted by Ben Munoz on February 22, 2012 at 9:34pm 0 Comments 0 Likes
Dear Friends and Family of LifeWithMultipleMyeloma,
As you well know, living with Myeloma can be very challenging not only for you but to your families as well. This organization was…
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Scott's Bio
Posted by Scott orn on February 10, 2012 at 5:56am 0 Comments 0 Likes
I’m the co-founder of this site and help run a group called Ben’s Friends (www.BensFriends.org) that builds patient support networks for people with rare conditions. I do this cause I love it. I’ve met so…
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Raising Hope for Multiple Myeloma, Just One Step at a Time
Posted by mary on February 9, 2012 at 8:49pm 0 Comments 1 Like
Multiple Myeloma is one difficult diseases to deal with. However, you need not to battle with it alone. There are just so many people who are willing to take it with you. Ann Guarino, a resident of Glen Rock also has a husband who suffers…
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THANKS FOR BEING PART OF THIS GROUP.....
Posted by Betina So on January 28, 2012 at 1:45pm 3 Comments 0 Likes
I am happy and wanna share to you guys how i feel when my Mom was diagnosed to have this Multiple Myeloma just this January 19, 2012.. still I am on stage of Denial.. She walks like 85 years old though she is just 50 years old.. She…
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Forum
Velcade Side Effects
Started by Christina in General. Last reply by rodney Feb 2. 9 Replies 0 Likes
Does anyone have side effects with Velcade. Any tips on how to manage them?Continue
Financial Assistance Through Friends of Treasure
Started by John "JC" Colyer in General Jan 10. 0 Replies 1 Like
Great News Everyone! BensFriends had partnered with a nonprofit foundation called Friends of Treasure that provides financial assistance to help families of chidren with rare diseases and vascular malformation patients.If you knew someone eligible…Continue
Tags: of, Treasure, Friends, Through, Assistance
Ben's Friends get international Exposure in The London Telegraph
Started by John "JC" Colyer in General Dec 30, 2011. 0 Replies 1 Like
I must just mention one other charity called Bens Friends, which does stirling work as an international network of online communities that provide support for people struggling with rare diseases.Ben's…Continue
How to Create Group and Organize A Meetup in Your City
Started by Ben Munoz in General Dec 19, 2011. 0 Replies 0 Likes
Since others have subsequently asked about organizing groups and meetups in their area, the moderators and I have decided to create this forum discussion so the community can throw out ideas and dates for meetups in other cities around the…Continue
MSN article: Progress in Treating Multiple Myeloma
Started by Danielle Walsh in General Dec 16, 2011. 0 Replies 0 Likes
Did anyone else see this article on MSN-Health?http://ning.it/vHFvrPExcerpt: If there's one disease that most shows the effects of recent improvements in cancer treatment, it's multiple myeloma.…Continue
Scientists identify first genetic link to myeloma
Started by John "JC" Colyer in General Nov 27, 2011. 0 Replies 0 Likes
Sunday 27 November 2011For the first time researchers have identified genetic variations that influence a person's chances of developing a type of blood cancer called …Continue
Latest Activity
MMRF Cofounder & CEO, Kathy Giusti, gives speech at MMRF Gala
MMRF Cofounder & CEO, Kathy Giusti, gives speech at Multiple Myeloma Research Foundation's 2008 Fall Gala
Video posted by John "JC" Colyer
Eric D Kroll left a comment for Joezmom
So glad you found us. You're not alone here!
John "JC" Colyer left a comment for Joezmom
Welcome Joezmom , I know you will connect with good people here that will offer you support and…
Top Content
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Velcade Side EffectsPosted by Christina on January 26, 2012 |
| 2 |
THANKS FOR BEING PART OF THIS GROUP.....Added by Betina So on January 28, 2012 |
| 3 |
When do you realize the hill is too steep to climb.Posted by RLS on November 11, 2011 |
| 4 |
CIMG0972Added by Betina So on January 28, 2012 |
| 5 |
My MOMAdded by Betina So on January 28, 2012 |
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Zack and the Dragon
12 Jan 2012—ALDSupport—Zack and the DragonHow I Live With Ataxia
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