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Birthdays Tomorrow

Blog Posts


Posted by LeslieK on April 7, 2015 at 2:15am 1 Comment

Hiya peeps Just wrote a long post and then got told I could only post 140 characters and I couldn't save what I had written aaarrrggghhhh.

Anyway. I started my chemo in January. I only lasted 4 weeks this time before it had to be…


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Learn More About Myeloma

Brought to you by Patient Power.



What is Multiple Myeloma?

Myeloma or Multiple Myeloma is a cancer of the plasma cells which are responsible for producing antibodies. Abnormal cells accumulate in the bone marrow, which then results to the interference of the production of normal blood cells.

In multiple myeloma, collections of abnormal plasma cells accumulate in the bone marrow, where they interfere with the production of normal blood cells. Most cases of myeloma also feature the production of a paraprotein—an abnormal antibody which can cause kidney problems. Bone lesions and hypercalcemia (high calcium levels) are also often encountered.


Chance to take an MM survey and receive a $150 Amazon gift card for participating

Started by dancermom in General yesterday. 0 Replies

Endeavour Clinical Solutions is supporting a new research survey including patients newly diagnosed with multiple myeloma within the last 4-12 months, and also patients with relapsed or recurrent myeloma. This research survey is taking place only…Continue

A Rare Aggressive silent MM attached my dad

Started by Haifa balfaqih in General. Last reply by sportsmomma Apr 16. 3 Replies

31 mar 2015lost a great man, I lost a great father, I lost a great teacher, I lost a wisdom of balance, I lost the heart of my soul. I love u baba.At 78 he was still working amd enjoying it. But Multiple Myeloma decided to attack him. He fought…Continue

Painful Goosebumps

Started by Scarymom in General. Last reply by Tammy Apr 15. 1 Reply

I had a SCT in january and since then whenever i get goosebumps, it hurts . It feels like my skin is getting pulled.Wondering if anything like this has ever happened to anyone else.??RegardsContinue

CIK treatment in China. Anyone can share his experiences?

Started by corka in General Apr 10. 0 Replies

Hello,My name is Maria. My dad has multiple Myeloma. The cancer was detected at 1,2MM level. He has already overcame 2 chemiotheraphy treatments – Talidomid with 60% remission and Velkied – with the result of 0,9MM. As he doesn’t response to these…Continue

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Chance to take an MM survey and receive a $150 Amazon gift card for participating

Endeavour Clinical Solutions is supporting a new research survey including patients newly diagnosed…See More

dancermom posted a discussion

Chance to take an MM survey and receive a $150 Amazon gift card for participating

Endeavour Clinical Solutions is supporting a new research survey including patients newly diagnosed…See More
zeepee@aol.com liked Scarymom's discussion Painful Goosebumps

Top Content 

1 Sunshine While Taking Revlimid

Sunshine While Taking Revlimid

Posted by JerseyGyrl on March 28, 2015

2 #endmyeloma happening this month

#endmyeloma happening this month

Posted by srkf12 on March 4, 2015

3 Painful Goosebumps

Painful Goosebumps

Posted by Scarymom on April 15, 2015

4 A Rare Aggressive silent MM attached my dad

A Rare Aggressive silent MM attached my dad

Posted by Haifa balfaqih on April 15, 2015

5 autologous stem cell transplant

autologous stem cell transplant

Posted by Scarymom on February 4, 2015


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Discussions from Synovial Sarcoma

Chemotheraphy for Synovial Sarcoma

My husband had three cylces of chemotherapy ( doxurubicin, Ifosfamide, mesna, dacarbazine). In his case (synovial sarcoma- right knee) Chemoteraphy didn't work. The response to chemo was minimal. Does anyone know someone with synovial sarcoma who had a good response to chemoterphy? what combination of drugs did they use?

Back/shoulder/neck pain

Has anyone experienced a nagging back/shoulder blade/neck pain with synovial sarcoma mets to lung?

I have a 5 cm tumor in my right lungs since March. It did not really bother me much until September when I had a pleural effusion. When the liquid was drained in september I had a relief until last week when I started feeling pain again. I had an X ray and ultra sound done on wednesday but there is no new effusion...so the doctors can really figure out what is causing the…


Can anyone tell me of some of their side effects of Neulasta and anything that might have helped.
Thank you

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