First, let me say that I am a new member reaching out to those who are fighting multiple myeloma. I was diagnosed in July 2015. I have undergone 4 cycles of Velcade, Dex and Revlimid. I had a stem cell transplant in December 2015.
As a result of my disease, the T-9 vertebrae in my spine was compressed and fractured causing me much pain. I have been in pain since July. My palliative team at Memorial Sloan Kettering Hospital, where I am being treated, have come up with many possible solutions, but to no avail. I do not take well to opiods and cannot take them. I am currently on a 37 Mcg Fentanyl patch (which is an opiod that I can somewhat tolerate) but it does not really curb the pain very efficiently. I cannot do a higher dose as it really affects my nervous system in a very negative way.
I was measured for a brace last week to improve my posture and I am seeing a pain management anesthesiologist for a possible nerve block to see if it can numb the pain.
I would like to know if anyone of you out there has had a similar experience to mine and how you have coped with it. I would very much like to taper off Fentanyl at some point if another procedure worked for me. I don't like the feeling that Fentanyl gives me. It makes me very loopy and lightheaded all the time.
Thank you for reading my discussion. I am looking forward to some responses.